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FACT-ES Functional Assessment of Cancer Therapy - Endocrine Symptoms For patients with Endocrine Symptoms LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview Below are the details for the FACT-ES measure: MEASURE NAME: Functional Assessment of Cancer Therapy - Endocrine Symptoms (FACT-ES) VERSION: 4 NUMBER OF ITEMS: 46 PATIENT POPULATION: Cancer patients 18 years and older receiving endocrine treatments RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Physical Well-Being, Social/Family Well-Being, Emotional Well-Being, Functional Well-Being, Endocrine Symptom Subscale TIME FOR COMPLETION: 10-15 minutes SCORING: Manual scoring template, some items are reverse scored. Subscale scores, total scores and TOI scores possible. SAS/SPSS algorithms available. RELATED MEASURES: FACT-B , NFBSI-16 , FBSI-8 DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the FACT-ES can be obtained by registering for permission. Users are not permitted to translate the FACT-ES without permission from FACIT.org. Permission from FACIT.org to translate the FACT-ES may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Fallowfield, L. J., Leaity, S. K., Howell, A., Benson, S. & Cella, D. Assessment of quality of life in women undergoing hormonal therapy for breast cancer: Validation of an endocrine symptom subscale for the FACT-B. Breast Cancer Research and Treatment 1999; 55: 189-199. Fallowfield, L., Atkins, L., Catt, S., Cox, A., Coxon, C., Langridge, C., Morris, R., & Price, M. Patients’ preference for administration of endocrine treatments by injection or tablets: results from a study of women with breast cancer. Annals of Oncology 2006; 17(2): 205–210. doi: 10.1093/annonc/mdj044. Fallowfield, L., Bliss, J., Porter, L., Price, M., Snowdon, C., Jones, S., Coombes, C., & Hall, E. Quality of Life in the Intergroup Exemestane Study: A Randomized Trial of Exemestane Versus Continued Tamoxifen After 2 to 3 Years of Tamoxifen in Postmenopausal Women With Primary Breast Cancer. Journal of Clinical Oncology 2006; 24(6): 910-917. doi: 10.1200/JCO.2005.03.3654. Hershman DL, Neugut AI, Moseley A, Arnold KB, Gralow JR, Henry NL, Hillyer GC, Ramsey SD, Unger JM. Patient Reported Outcomes and Long-Term Non-Adherence to Aromatase Inhibitors. J Natl Cancer Inst. 2021 Feb 25:djab022. doi: 10.1093/jnci/djab022. Epub ahead of print. PMID: 33629114. Hickey, M., Marino, J., Braat, S., Wong, S. A randomized, double-blind, crossover trial comparing a silicone versus water-based lubricant for sexual discomfort after breast cancer. Breast Cancer Research and Treatment 2016; 158:79–90. doi: 10.1007/s10549-016-3865-1. Marino, J., Saunders, C., Emery, L., Green, H., Doherty, D., & Hickey, M. Nature and severity of menopausal symptoms and their impact on quality of life and sexual function in cancer survivors compared with women without a cancer history. Menopause 2014; 21(3): 267-274. doi: 10.1097/gme.0b013e3182976f46. Marino J,., Saunders, C., Emery. L., Green, H., Doherty, D., & Hickey, M. How does adjuvant chemotherapy affect menopausal symptoms, sexual function, and quality of life after breast cancer? Menopause 2016; 23(9): 1000-1008. doi: 10.1097/GME.0000000000000664. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FACT-B Functional Assessment of Cancer Therapy – Breast LEARN MORE NFBSI-16 National Comprehensive Cancer Network/Functional Assessment of Cancer Therapy Breast Cancer Symptom Index - 16 Item Version LEARN MORE FBSI-8 FACT Breast Symptom Index LEARN MORE

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FAMS Functional Assessment of Multiple Sclerosis LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview Below are the details for the FAMS measure: MEASURE NAME: Functional Assessment of Multiple Sclerosis (FAMS) VERSION: 4 NUMBER OF ITEMS: 58 PATIENT POPULATION: Multiple sclerosis patients 18 years and older RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Mobility, Symptoms, Emotional Well-Being, General Contentment, Thinking and Fatigue, Family/Social Well-Being, Additional Concerns TIME FOR COMPLETION: 15-20 minutes SCORING: Manual scoring template, some items are reverse scored. Subscale scores and total scores possible. SAS/SPSS algorithms available. RELATED MEASURES: FAHI , FACIT-Dyspnea , FACIT-TB DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the FAMS can be obtained by registering for permission. Users are not permitted to translate the FAMS without permission from FACIT.org. Permission from FACIT.org to translate the FAMS may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Cella, D.F., Dineen, K., Arnason, B., Reder, A., Webster, K.A., Karabatsos, G., Chang, C., Lloyd, S., Mo, F., Stewart, J., & Stefoski, D. Validation of the Functional Assessment of Multiple Sclerosis Quality of life instrument. Neurology 1996; 47: 129-139. doi: 10.1212/WNL.47.1.129. Fischer, J., LaRocca, N., Miller, D., Ritvo, P., Andrews, H. & Paty, D. Recent developments in the assessment of quality of life in Multiple Sclerosis (MS). Multiple Sclerosis 1999; 5(4): 251-259. doi: 10.1177/135245859900500410. Kossakowska, M. Standaryzacja polskiej wersji Kwestionariusza do Oceny Jakości Życia w Stwardnieniu Rozsianym (FAMS). Psychologia Jakości Życia , 2004; 3(1): 61-80. Riazi, A., Hobart, J., Lamping, D., Fitzpatrick, R., & Thompson, A. Evidence-based measurement in multiple sclerosis: the psychometric properties of the physical and psychological dimensions of three quality of life rating scales. Multiple Sclerosis 2003; 9; 411-419. doi: 10.1191/1352458503ms929oa. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FAHI Functional Assessment of HIV Infection LEARN MORE FACIT-Dyspnea Functional Assessment of Chronic Illness Therapy - Dyspnea-10 item LEARN MORE FACIT-TB Functional Assessment of Chronic Illness Therapy - Tuberculosis LEARN MORE

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We at FACITtrans view professional memberships as an integral part of sharing knowledge within our many communities. We are a proud member and active contributor to the following leading professional organizations: Professional Society Membership & Affiliations We at FACITtrans view professional memberships as an integral part of sharing knowledge within our many communities. We are a proud member and active contributor to the following leading professional organizations: ISOQOL: International Society for Quality of Life Research Member for more than 20 years, and a proud financial sponsor. Our President, Benjamin Arnold, served as ISOQOL’s Translation and Cross-Cultural Adaptation - Special Interest Group (TCA-SIG) Co-Chair from 2016 to 2018, is currently a member of the TCA-SIG Steering Committee and the Ibero America SIG. Our Executive Director, Emily Parks-Vernizzi, served as ISOQOL’s TCA-SIG Co-Chair from 2021 to 2023 and is currently a member of the TCA-SIG Steering Committee and the Digital Health and eCOA SIG (https://www.isoqol.org/sigs/ ) We regularly attend ISOQOL Annual Conferences and meetings in North America, Europe, Asia and Latin America where we consistently present posters, presentations, and workshops related to translation and cultural adaptation of Clinical Outcome Assessment (COA) measures. ISPOR: International Society for Pharmacoeconomics and Outcomes Research Member for more than 20 years, and we are active participants in the Chicago Regional Chapter (CRC). Founding member of the ISPOR Task Force for Translation and Cultural Adaptation, which established “Principles of Good Practice for the Translation and Cultural Adaptation Process for Patient-Reported Outcomes (PRO)” (Wild, 2005). A number of our team members are building the ISPOR Clinical Outcomes Assessment Task Force with other recognized professionals in the field. We regularly present posters, present at panel discussions and attend ISPOR’s Annual Conferences and meetings in North America, Europe, Asia and Latin America. ATA: American Translators Association Member for more than 20 years Our team regularly presents at conferences, publishes articles, presents posters, and attends meetings. PHO: PROMIS Health Organization (PHO) and Health Measures Conferences We proudly support the PHO, whose mission is to improve health outcomes by developing, maintaining, improving, and encouraging the application of the Patient Reported Outcomes Measurement Information System (PROMIS) in research and clinical practice. At the PHO’s Annual conferences, we regularly present posters, presentations, and facilitate roundtable discussions related to translation and cultural adaptation of PROMIS measures. We also contribute financially on a yearly basis so that the PHO can hold its Annual Conferences where scientists present and exchange PROMIS-related research information and learnings. Women's Shelter Women's Shelter: Each year we gladly contribute to this organization that provides vital services and support to women in need.

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