PROMIS SF v1.0-Dyspnea-Severity 5b Patient Reported Outcomes Measurement Information System - Short Form - Dyspnea-Severity 5b For patients with dyspnea LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview The PROMIS SF v1.0 – Dyspnea-Severity 5b includes 5 items from part I of the FACIT-Dyspnea adopted by the PROMIS Health Organization. MEASURE NAME: Patient Reported Outcomes Measurement Information System - Short Form - Dyspnea-Severity 5b VERSION: 1 NUMBER OF ITEMS: 5 PATIENT POPULATION: Dyspnea patients 18 years and older RECALL PERIOD: Past 7 days RESPONSE SCALE: 4 point Likert-type scale DATA COLLECTION: Paper and electronic For permission to implement and administer the measure electronically, please visit: https://www.healthmeasures.net/implement-healthmeasures/administration-platforms ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Severity TIME FOR COMPLETION: Less than 5 minutes SCORING: PROMIS Scoring Service: http://www.healthmeasures.net/score-and-interpret/calculate-scores/scoring-instructions RELATED MEASURES: FACIT-Dyspnea , PROMIS SF v1.0 – Dyspnea-Severity 10a , PROMIS SF v1.0 – Dyspnea-Severity 5a DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the PROMIS-SF-v1.0-Dyspnea-Severity 5b can be obtained by registering for permission. Users are not permitted to translate the PROMIS-SF-v1.0-Dyspnea-Severity 5b without permission from FACIT.org. Permission from FACIT.org to translate the PROMIS-SF-v1.0-Dyspnea-Severity 5b may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Choi, S., Victorson, D., Yount, S., Anton, S., & Cella, D. Development of a conceptual framework and calibrated item banks to measure patient reported dyspnea severity and related functional limitations. Value in Health 2011; 14: 291-306. Ruo, B., Choi, S., Baker, D., Grady, K., & Cella,D. Development and validation of a computer adaptive test measuring dyspnea in heart failure. Journal of Cardiac Failure 2010; 16(8): 659-668. doi: 10.1016/j.cardfail.2010.03.002. Victorson, D., Anton, S., Hamilton, A., Yount, S., & Cella, D. A conceptual model of the experience of dyspnea and functional limitations in COPD. Value in Health 2009; 12(6): 1018-1025. Yount, S., Choi, S., Victorson, D., Ruo, B., Ray, D., Cella, D., Anton, S., & Hamilton, A. (2011) Brief, valid measures of dyspnea and related functional limitations in chronic obstructive pulmonary disease (COPD). Value in Health 2011; 14: 307-315. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FACIT-Dyspnea Functional Assessment of Chronic Illness Therapy - Dyspnea-10 item LEARN MORE PROMIS SF v1.0 – Dyspnea Severity 10a Patient-Reported Outcomes Measurement Information System Short Form - Dyspnea Severity 10a LEARN MORE PROMIS SF v1.0 – Dyspnea Severity 5a Patient-Reported Outcomes Measurement Information System Short Form - Dyspnea Severity 5a LEARN MORE

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peds FAACT-10 Pediatric Functional Assessment of Anorexia/Cachexia Treatment – 10 item version Pediatric Functional Assessment of Anorexia/Cachexia Treatment – 10 item version LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview Below are the details for the peds FAACT measure: MEASURE NAME: Pediatric Functional Assessment of Anorexia/Cachexia Treatment – 10 item version VERSION: 2 NUMBER OF ITEMS: 10 PATIENT POPULATION: Pediatric cancer patients 8-18 years old RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Not available TIME FOR COMPLETION: Less than 5 minutes SCORING: Manual scoring template, some items are reverse scored. Total scores possible. RELATED MEASURES: peds FACT-Br , peds FACIT-F , peds FAACT DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the peds FAACT-10 can be obtained by registering for permission. Users are not permitted to translate the peds FAACT-10 without permission from FACIT.org. Permission from FACIT.org to translate the peds FAACT-10 may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures peds FACT-Br Pediatric Functional Assessment of Chronic Illness Therapy – Brain LEARN MORE peds FACIT-F Pediatric Functional Assessment of Chronic Illness Therapy – Fatigue LEARN MORE peds FAACT Pediatric Functional Assessment of Anorexia/Cachexia Treatment LEARN MORE

FACT-PSI Functional Assessment of Cancer Therapy - Pulmonary Symptom Index For patients with Lung cancer; a Pulmonary Symptom Index LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview The FACT-PSI is a 4 item subset of the FACT-LCS which measures pulmonary symptoms in patients with lung cancer. The Functional Assessment of Cancer Therapy-Lung (FACT-L) Scale is a 36-item self-report instrument that measures multidimensional quality of life. It was developed from 1987-1993 and first published in 1995. The FACT-L meets a growing need for disease-specific health-related quality of life (HRQOL) questionnaires that address the general and unique concerns of patients diagnosed with lung cancer. Subsequent to its development, its results have been published in over 25 papers from over 15 unique data sets including over 4,000 people with lung cancer. Since 1995, studied groups have included cancer patients receiving chemotherapy, cancer patients receiving radiotherapy, terminally-ill patients and disease-free survivors. It is a widely-used, reliable and valid measure of multidimensional health status among people with lung cancer. It is brief, has clearly-written, easy-to-read questions, flexible modes of administration shown to be equivalent, and is translated in several dozen languages. MEASURE NAME: Functional Assessment of Cancer Therapy - Pulmonary Symptom Index (FACT-PSI) VERSION: 4 NUMBER OF ITEMS: 4 PATIENT POPULATION: Lung cancer patients 18 and older RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Pulmonary Symptom Index TIME FOR COMPLETION: Less than 5 minutes SCORING: Manual scoring template, some items are reverse scored. Total scores possible. RELATED MEASURES: FACT-L , FLSI , NFLSI-17 , FLSI-12 , FACT-LCS DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the FACT-PSI can be obtained by registering for permission. Users are not permitted to translate the FACT-PSI without permission from FACIT.org. Permission from FACIT.org to translate the FACT-PSI may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Rosenberg, T., Möller, S., Abildgaard, N., Nørgaard, J.N., Lysén, A., Tsykonova, G., Joao, C., Vangsted, A., Schjesvold, F. and Nielsen, L.K. (2024), Health-Related Quality of Life During Carfilzomib–Lenalidomide–Dexamethasone Consolidation: Findings From the Multiple Myeloma CONPET Study. Eur J Haematol. https://doi.org/10.1111/ejh.14358 . Cella, D., Paul, D., Yount, S., Winn, R., Chang, C-H, Banik, D., & Weeks, J. What are the most important symptom targets when treating advanced cancer? A survey of providers in the National Comprehensive Cancer Network (NCCN). Cancer Investigation 2003; 21(4): 526-535. doi: 10.108/CNV-120022366. Cella, D., Rosenbloom, S., Beaumont, J., Yount, J., Paul, D., Hampton, D., Abernethy, A., Jacobsen, P., Syrjala, K., & Von Roenn, J. Development and validation of 11 symptom indexes to evaluate response to chemotherapy for advanced cancer. Journal of the National Comprehensive Cancer Network; 2011; 9(3): 268-278. doi: 10.6004/jnccn.2011.0026. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FACT-L Functional Assessment of Cancer Therapy – Lung LEARN MORE FLSI Functional Assessment of Cancer Therapy Lung Cancer Symptom Index - 6 Item Version LEARN MORE NFLSI-17 Functional Assessment of Cancer Therapy Lung Cancer Symptom Index – 17 Item Version LEARN MORE

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FACIT-Sp Non-Illness Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being - Non-Illness Version Non-Illness Version of the 12-item Spiritual Well-Being Scale LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview The FACIT-Sp Non-Illness Version is identical to the FACIT-Sp-12 aside from minor modifications to two items in which “illness” has been revised to “difficult times.” MEASURE NAME: Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being (FACIT-Sp) Non-Illness Version VERSION: 4 NUMBER OF ITEMS: 12 PATIENT POPULATION: Subjects 18 years and older RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Spiritual Well-Being, Meaning, Peace, Faith TIME FOR COMPLETION: Less than 5 minutes SCORING: Manual scoring template, some items are reverse scored. Subscale scores and total scores possible. SAS/SPSS algorithms available. RELATED MEASURES: FACIT-Sp , FACIT-Sp-Ex , FACIT-SP-12 DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the FACIT-Sp Non-Illness Version can be obtained by registering for permission. Users are not permitted to translate the FACIT-Sp Non-Illness Version without permission from FACIT.org. Permission from FACIT.org to translate the FACIT-Sp Non-Illness may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Bormann, J., Aschbacher, K., Wetherell, J., Roesch, S., & Redwine., L. Effects of faith/assurance on cortisol levels are enhanced by a spiritual mantram intervention in adults with HIV: A randomized trial. Journal of Psychosomatic Research 2009; 66: 161–171. doi: 10.1016/j.jpsychores.2008.09.017. Bormann, J., Gifford, A., Shively, M., Smith, T., Redwine, L., Kelly, A., Becker, S., Gershwin, M., Bone, P., & Belding, W. Effects of Spiritual Mantram Repetition on HIV Outcomes: A Randomized Controlled Trial. Journal of Behavioral Medicine 2006; 29(4): 359-376. doi: 10.1007/s10865-006-9063-6. Brady, M.J., Peterman, A.H., Fitchett, G., Mo, M., & Cella, D. A case for including spirituality in quality of life measurement in oncology. Psycho-Oncology 1999; 8: 417-428. Bredle, J., Salsman, J., Debb, S., Arnold, B., & Cella, D. Spiritual Well-Being as a component of health-related quality of life: the functional assessment of chronic illness therapy—spiritual well-being scale (FACIT-Sp). Religions 2011; 2(1): 77-94. doi: 10.3390/rel2010077. Canada, A, Murphy, P., Fitchett, G., Peterman, A., & Schover, L. A 3-factor model for the FACIT-Sp. Psycho-Oncology 2008; 17: 908–916. doi: 10.1002/pon.1307.   Cotton, S., Levine, E., Fitzpatrick, C., Dold, K, & Targ, E. Exploring the relationships among spiritual well-being, quality of life, and psychological adjustment in women with breast cancer. Psycho-Oncology 1999; 8: 429–438. Dapueto, J., Servente, L., Francolino, C., & Hahn, E. Determinants of Quality of Life in Patients with Cancer: A South American Study. Cancer 2005; 103(5): 1072-1081. doi: 10.1002/cncr.20870. Edmondson, D., Park, C., Blank, T., Fenster, J., & Mills, M. Deconstructing spiritual well-being: existential well-being and HRQOL in cancer survivors. Psycho-Oncology 2008; 17: 161–169. doi: 10.1002/pon.1197. Fradelos, E., Tzavella, F., Koukia, E., Tsaras, K., Papathanasiou, I., Aroni, A., Alikari, V., Ralli, M., Bredle, J., & Zyga1, S. The translation, validation and cultural adaptation of functional assessment of chronic illness therapy – spiritual well-being 12 (FACIT-SP12) scale in Greek language. Mater Sociomed 2016; 28(3): 229-234. doi: 10.5455/msm.2016.28.229-234. Jarafi, N., Zamani, A., Lazenby, M., Farajzadegan, Z., Emami, H., & Loghmani, A. Translation and validation of the Persian version of the functional assessment of chronic illness therapy—Spiritual well-being scale (FACIT-Sp) among Muslim Iranians in treatment for cancer. Palliative and Supportive Care 2013; 11: 29–35. doi:10.1017/S1478951512000727. Krupski, T., Kwan, L., Fink, A., Sonn, G., Maliski, S., & Litwin, M. Spirituality Influences Health Related Quality of Life in Men with Prostate Cancer. Psycho-Oncology 2006; 15: 121–131. doi: 10.1002/pon.929. Lazenby, M., Khatib, J., 2, Al-Khair, F., & Neamat, M. Psychometric properties of the Functional Assessment of Chronic Illness Therapy—Spiritual Well-being (FACIT-Sp) in an Arabic-speaking, predominantly Muslim population. Psycho-Oncology 2011; 22(1): 220-227. doi: 10.1002/pon.2062. McClain, C., Rosenfeld, B., & Breitbart, W. Effect of spiritual well-being on end-of-life despair in terminally-ill cancer patients. The Lancet 2003; 361: 1603-1607. McClain-Jacobson, C., Rosenfeld, B., Rosenfeld, B., Kosinski, A., Pessin, H., Cimino, J., & Breitbart, W. Belief in an afterlife, spiritual well-being and end-of-life despair in patients with advanced cancer. General Hospital Psychiatry 2004; 26: 484-486. doi: 10.1016/j.genhosppsych. Morgan, P., Gaston-Johansson, F., & Mock, V. Spiritual Well-Being, Religious Coping, and the Quality of Life of African American Breast Cancer Treatment: A Pilot Study. The ABNF Journal 2006; 73-77. Murphy, P., Canada, A., Fitchett, G., Stein, K., Portier, K., Crammer, C., & Peterman, A. An examination of the 3-factor model and structural invariance across racial/ethnic groups for the FACIT-Sp: a report from the American Cancer Society’s Study of Cancer Survivors-II (SCS-II). Psycho-Oncology 2010; 19: 264–272. doi: 10.1002/pon.1559. Perkins, E., Small, B., Balducci, L., Extermann, M., Robb, C., & Haley, W. Individual differences in well-being in older breast cancer survivors. Critical Reviews in Oncology/Hematology 2007; 62: 74-83. doi: 10.1016/j.critrevonc.2006.11.002. Peterman, A., Fitchett, G., Brady, M., & Hernandez, L. Measuring Spiritual Well-Being in People With Cancer: The Functional Assessment of Chronic Illness Therapy—Spiritual Well-Being Scale (FACIT-Sp). Annals of Behavioral Medicine 2002; 24(1):49–58. Rodin, G., Zimmermann, C., Rydall, A., Jones, J., Shepherd, A., Moore, M., Fruh, M., Donner, A., Gagliese, L. The Desire for Hastened Death in Patients with Metastatic Cancer. Journal of Pain and Symptom Management 2007; 33(6): 661-674. doi: 10.1016/j.jpainsymman. Rodin, G., Lo, C., Mikulincer, M., Donner, A., Gagliese, L., & Zimmermann, C. Pathways to distress: The multiple determinants of depression, hopelessness, and the desire for hasted death in metastatic cancer patients. Social Science & Medicine 2008; 68: 562–569. doi: 10.1016/j.socscimed. Schnoll, R., Harlow, L., & Brower, L. Spirituality, Demographic, and Disease Factors, and Adjustment to Cancer. Cancer Practice 2000; 8(6): 298-304. Stefanek, M., McDonald, P., & Hess, S. Religion, Spirituality and Cancer: Current Status and Methodological Challenges. Psycho-Oncology 2005; 14: 450–463. doi: 10.1002/pon.861. Stojković, S. & Prlić, N. Effect of faith on the acceptance of chronic disease patients. South Eastern Europe Health Sciences Journal 2012; 2(1): 52-61. Tate, D. & Forchheimer, M. Quality of Life, Life Satisfaction, and Spirituality: Comparing Outcomes Between Rehabilitation and Cancer Patients. American Journal of Physical Medicine & Rehabilitation 2002; 81(6): 400-410. Trevino, K., Pargament, K., Cotton, S., Leonard. A., Hahn, J., Caprini-Faigin, C., & Tsevat, J. Religious Coping and Physiological, Psychological, Social, and Spiritual Outcomes in Patients with HIV/AIDS: Cross-sectional and Longitudinal Findings. AIDS and Behavior 2010; 14: 379-389. doi: 10.1007/s10461-007-9332-6. Visser, A., Garssen, B., & Vingerhoets, A. Spirituality and well-being in cancer patients: a review. Psycho-Oncology 2010; 19: 565–572. doi: 10.1002/pon. Zavala, M., Maliski, S., Kwan, L., Fink, A., & Litwin, M. Spirituality and quality of life in low-income men with metastatic prostate cancer. Psycho-Oncology 2009; 18: 753–761. doi: 10.1002/pon.1460. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FACT-Sp Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being LEARN MORE FACIT-Sp-Ex Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being Expanded Version LEARN MORE FACIT-Sp-12 Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being 12 Item Scale LEARN MORE

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FCSI Functional Assessment of Cancer Therapy Colorectal Cancer Symptom Index - 9 Item Version For patients with Colorectal cancer; A FACT-Colorectal Symptom Index (a subset of FACT-C containing 9 items) LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview Below are the details for the FCSI measure: MEASURE NAME: Functional Assessment of Cancer Therapy Colorectal Cancer Symptom Index - 9 Item Version (FCSI) VERSION: 4 NUMBER OF ITEMS: 9 PATIENT POPULATION: Colorectal cancer patients 18 years and older RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Colorectal cancer symptom index TIME FOR COMPLETION: Less than 5 minutes SCORING: Manual scoring template, some items are reverse scored. Total scores possible. SAS/SPSS algorithms available. RELATED MEASURES: FACT-C , NFCSI-19 , FACT-G DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the NFCSI can be obtained by registering for permission. Users are not permitted to translate the NFCSI without permission from FACIT.org. Permission from FACIT.org to translate the NFCSI may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Cella, D., Paul, D., Yount, S., Winn, R., Chang, C-H, Banik, D., & Weeks, J. What are the most important symptom targets when treating advanced cancer? A survey of providers in the National Comprehensive Cancer Network (NCCN). Cancer Investigation 2003; 21(4): 526-535. doi: 10.108/CNV-120022366. Cella, D., Rosenbloom, S., Beaumont, J., Yount, J., Paul, D., Hampton, D., Abernethy, A., Jacobsen, P., Syrjala, K., & Von Roenn, J. Development and validation of 11 symptom indexes to evaluate response to chemotherapy for advanced cancer. Journal of the National Comprehensive Cancer Network; 2011; 9(3): 268-278. doi: 10.6004/jnccn.2011.0026. Colwell H.H., Mathias S.D., Turner M.P., et. Al. Psychometric evaluation of the FACT colorectal cancer symptom index (FCSI-9): reliability, validity, responsiveness, and clinical meaningfulness. The Oncologist 2010; 15(3): 308-316. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FACT-C Functional Assessment of Cancer Therapy – Colorectal LEARN MORE NFCSI-19 National Comprehensive Cancer Network/Functional Assessment of Cancer Therapy Colorectal Cancer Symptom Index - 19 Item Version LEARN MORE FACT-G Functional Assessment of Cancer Therapy – General LEARN MORE

FACIT-Sp Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview Below are the details for the FACIT-Sp measure: MEASURE NAME: Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being (FACIT-Sp) VERSION: 4 NUMBER OF ITEMS: 39 PATIENT POPULATION: Patients 18 years and older RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Physical Well-Being, Social/Family Well-Being, Emotional Well-Being, Functional Well-Being, Spiritual Well-Being Subscale TIME FOR COMPLETION: 10-15 minutes SCORING: Manual scoring template, some items are reverse scored. Subscale scores and total scores possible. SAS/SPSS algorithms available. RELATED MEASURES: FACIT-Sp-12 , FACIT-Sp-Ex , FACIT-Pal DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the FACIT-Sp can be obtained by registering for permission. Users are not permitted to translate the FACIT-Sp without permission from FACIT.org. Permission from FACIT.org to translate the FACIT-Sp may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Bormann, J., Aschbacher, K., Wetherell, J., Roesch, S., & Redwine., L. Effects of faith/assurance on cortisol levels are enhanced by a spiritual mantram intervention in adults with HIV: A randomized trial. Journal of Psychosomatic Research 2009; 66: 161–171. doi: 10.1016/j.jpsychores.2008.09.017. Bormann, J., Gifford, A., Shively, M., Smith, T., Redwine, L., Kelly, A., Becker, S., Gershwin, M., Bone, P., & Belding, W. Effects of Spiritual Mantram Repetition on HIV Outcomes: A Randomized Controlled Trial. Journal of Behavioral Medicine 2006; 29(4): 359-376. doi: 10.1007/s10865-006-9063-6. Brady, M.J., Peterman, A.H., Fitchett, G., Mo, M., & Cella, D. A case for including spirituality in quality of life measurement in oncology. Psycho-Oncology 1999; 8: 417-428. Bredle, J., Salsman, J., Debb, S., Arnold, B., & Cella, D. Spiritual Well-Being as a component of health-related quality of life: the functional assessment of chronic illness therapy—spiritual well-being scale (FACIT-Sp). Religions 2011; 2(1): 77-94. doi: 10.3390/rel2010077. Canada, A, Murphy, P., Fitchett, G., Peterman, A., & Schover, L. A 3-factor model for the FACIT-Sp. Psycho-Oncology 2008; 17: 908–916. doi: 10.1002/pon.1307. Cotton, S., Levine, E., Fitzpatrick, C., Dold, K, & Targ, E. Exploring the relationships among spiritual well-being, quality of life, and psychological adjustment in women with breast cancer. Psycho-Oncology 1999; 8: 429–438. Dapueto, J., Servente, L., Francolino, C., & Hahn, E. Determinants of Quality of Life in Patients with Cancer: A South American Study. Cancer 2005; 103(5): 1072-1081. doi: 10.1002/cncr.20870. Edmondson, D., Park, C., Blank, T., Fenster, J., & Mills, M. Deconstructing spiritual well-being: existential well-being and HRQOL in cancer survivors. Psycho-Oncology 2008; 17: 161–169. doi: 10.1002/pon.1197. Fradelos, E., Tzavella, F., Koukia, E., Tsaras, K., Papathanasiou, I., Aroni, A., Alikari, V., Ralli, M., Bredle, J., & Zyga1, S. The translation, validation and cultural adaptation of functional assessment of chronic illness therapy – spiritual well-being 12 (FACIT-SP12) scale in Greek language. Mater Sociomed 2016; 28(3): 229-234. doi: 10.5455/msm.2016.28.229-234. Hawkes, A., Pakenham, K., Chambers, S., Patrao, T., & Courneya, K. Effects of a Multiple Health Behavior Change Intervention for Colorectal Cancer Survivors on Psychosocial Outcomes and Quality of Life: a Randomized Controlled Trial. Annals of Behavioral Medicine. 2014; 48:359–370. doi: 10.1007/s12160-014-9610-2. Jafari, N., Farajzadegan, Z., Zamani, A., Bahrami, F., Emami, H., & Loghmani, A. Spiritual well-being and quality of life in Iranian women with breast cancer undergoing radiation therapy. Support Cancer Care 2013; 21: 1219-12225. doi: 10.1007/s00520-012-1650-1. Jarafi, N., Zamani, A., Lazenby, M., Farajzadegan, Z., Emami, H., & Loghmani, A. Translation and validation of the Persian version of the functional assessment of chronic illness therapy—Spiritual well-being scale (FACIT-Sp) among Muslim Iranians in treatment for cancer. Palliative and Supportive Care 2013; 11: 29–35. doi:10.1017/S1478951512000727. Kahraman, B.N., Pehlivan, S. The effect of spiritual well-being on illness perception of lung cancer patıents. Support Care Cancer 31 , 107 (2023). https://doi.org/10.1007/s00520-022-07527-z Krupski, T., Kwan, L., Fink, A., Sonn, G., Maliski, S., & Litwin, M. Spirituality Influences Health Related Quality of Life in Men with Prostate Cancer. Psycho-Oncology 2006; 15: 121–131. doi: 10.1002/pon.929. Lazenby, M., Khatib, J., 2, Al-Khair, F., & Neamat, M. Psychometric properties of the Functional Assessment of Chronic Illness Therapy—Spiritual Well-being (FACIT-Sp) in an Arabic-speaking, predominantly Muslim population. Psycho-Oncology 2011; 22(1): 220-227. doi: 10.1002/pon.2062. McClain, C., Rosenfeld, B., & Breitbart, W. Effect of spiritual well-being on end-of-life despair in terminally-ill cancer patients. The Lancet 2003; 361: 1603-1607. McClain-Jacobson, C., Rosenfeld, B., Rosenfeld, B., Kosinski, A., Pessin, H., Cimino, J., & Breitbart, W. Belief in an afterlife, spiritual well-being and end-of-life despair in patients with advanced cancer. General Hospital Psychiatry 2004; 26: 484-486. doi: 10.1016/j.genhosppsych. Morgan, P., Gaston-Johansson, F., & Mock, V. Spiritual Well-Being, Religious Coping, and the Quality of Life of African American Breast Cancer Treatment: A Pilot Study. The ABNF Journal 2006; 73-77. Munoz, A., Salsman, J., Stein, K., & Cella, D. Reference values of the functional assessment of chronic illness therapy - spiritual well-being (FACIT-Sp-12): A report from the American Cancer Society's studies of cancer survivors. Cancer 2015; 121(11):1838-1844. doi: 10.1002/cncr.29286. Murphy, P., Canada, A., Fitchett, G., Stein, K., Portier, K., Crammer, C., & Peterman, A. An examination of the 3-factor model and structural invariance across racial/ethnic groups for the FACIT-Sp: a report from the American Cancer Society’s Study of Cancer Survivors-II (SCS-II). Psycho-Oncology 2010; 19: 264–272. doi: 10.1002/pon.1559. Perkins, E., Small, B., Balducci, L., Extermann, M., Robb, C., & Haley, W. Individual differences in well-being in older breast cancer survivors. Critical Reviews in Oncology/Hematology 2007; 62: 74-83. doi: 10.1016/j.critrevonc.2006.11.002. Peterman, A., Fitchett, G., Brady, M., & Hernandez, L. Measuring Spiritual Well-Being in People With Cancer: The Functional Assessment of Chronic Illness Therapy—Spiritual Well-Being Scale (FACIT-Sp). Annals of Behavioral Medicine 2002; 24(1): 49–58. Rodin, G., Zimmermann, C., Rydall, A., Jones, J., Shepherd, A., Moore, M., Fruh, M., Donner, A., Gagliese, L. The Desire for Hastened Death in Patients with Metastatic Cancer. Journal of Pain and Symptom Management 2007; 33(6): 661-674. doi: 10.1016/j.jpainsymman. Rodin, G., Lo, C., Mikulincer, M., Donner, A., Gagliese, L., & Zimmermann, C. Pathways to distress: The multiple determinants of depression, hopelessness, and the desire for hasted death in metastatic cancer patients. Social Science & Medicine 2008; 68: 562–569. doi: 10.1016/j.socscimed. Salsman, J., Yost, K., West, D., & Cella, D. Spiritual well-being and health-related quality of life in colorectal cancer: A multi-site examination of the role of personal meaning. Supportive Care in Cancer 2011; 19: 757–764. doi: 10.1007/s00520-010-0871-4. Schnoll, R., Harlow, L., & Brower, L. Spirituality, Demographic, and Disease Factors, and Adjustment to Cancer. Cancer Practice 2000; 8(6): 298-304. Stefanek, M., McDonald, P., & Hess, S. Religion, Spirituality and Cancer: Current Status and Methodological Challenges. Psycho-Oncology 2005; 14: 450–463. doi: 10.1002/pon.861. Stojković, S. & Prlić, N. Effect of faith on the acceptance of chronic disease patients. South Eastern Europe Health Sciences Journal 2012; 2(1): 52-61. Tate, D. & Forchheimer, M. Quality of Life, Life Satisfaction, and Spirituality: Comparing Outcomes Between Rehabilitation and Cancer Patients. American Journal of Physical Medicine & Rehabilitation 2002; 81(6): 400-410. Trevino, K., Pargament, K., Cotton, S., Leonard. A., Hahn, J., Caprini-Faigin, C., & Tsevat, J. Religious Coping and Physiological, Psychological, Social, and Spiritual Outcomes in Patients with HIV/AIDS: Cross-sectional and Longitudinal Findings. AIDS and Behavior 2010; 14: 379-389. doi: 10.1007/s10461-007-9332-6. Visser, A., Garssen, B., & Vingerhoets, A. Spirituality and well-being in cancer patients: a review. Psycho-Oncology 2010; 19: 565–572. doi: 10.1002/pon. Zavala, M., Maliski, S., Kwan, L., Fink, A., & Litwin, M. Spirituality and quality of life in low-income men with metastatic prostate cancer. Psycho-Oncology 2009; 18: 753–761. doi: 10.1002/pon.1460. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FACIT-Sp-12 Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being 12 Item Scale LEARN MORE FACIT-Sp-Ex Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being Expanded Version LEARN MORE FACIT-Pal Functional Assessment of Chronic Illness Therapy - Palliative Care LEARN MORE

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