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FACIT-Sp-12 Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being 12 Item Scale The 12-item Spiritual Well-Being Scale LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview Below are the details for the FACIT-Sp-12 measure: MEASURE NAME: Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being 12 Item Scale (FACIT-Sp-12) VERSION: 4 NUMBER OF ITEMS: 12 PATIENT POPULATION: Patients 18 years and older RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Spiritual Well-Being, Meaning, Peace, Faith TIME FOR COMPLETION: Less than 5 minutes SCORING: Manual scoring template, some items are reverse scored. Subscale scores and total scores possible. SAS/SPSS algorithms available. RELATED MEASURES: FACIT-Sp , FACIT-Sp-Ex , FACIT-Pal DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the FACIT-Sp-12 can be obtained by registering for permission. Users are not permitted to translate the FACIT-Sp-12 without permission from FACIT.org. Permission from FACIT.org to translate the FACIT-Sp-12 may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Bormann, J., Aschbacher, K., Wetherell, J., Roesch, S., & Redwine., L. Effects of faith/assurance on cortisol levels are enhanced by a spiritual mantram intervention in adults with HIV: A randomized trial. Journal of Psychosomatic Research 2009; 66: 161–171. doi: 10.1016/j.jpsychores.2008.09.017. Bormann, J., Gifford, A., Shively, M., Smith, T., Redwine, L., Kelly, A., Becker, S., Gershwin, M., Bone, P., & Belding, W. Effects of Spiritual Mantram Repetition on HIV Outcomes: A Randomized Controlled Trial. Journal of Behavioral Medicine 2006; 29(4): 359-376. doi: 10.1007/s10865-006-9063-6. Brady, M.J., Peterman, A.H., Fitchett, G., Mo, M., & Cella, D. A case for including spirituality in quality of life measurement in oncology. Psycho-Oncology 1999; 8: 417-428. Bredle, J., Salsman, J., Debb, S., Arnold, B., & Cella, D. Spiritual Well-Being as a component of health-related quality of life: the functional assessment of chronic illness therapy—spiritual well-being scale (FACIT-Sp). Religions 2011; 2(1): 77-94. doi: 10.3390/rel2010077. Canada, A, Murphy, P., Fitchett, G., Peterman, A., & Schover, L. A 3-factor model for the FACIT-Sp. Psycho-Oncology 2008; 17: 908–916. doi: 10.1002/pon.1307.   Cotton, S., Levine, E., Fitzpatrick, C., Dold, K, & Targ, E. Exploring the relationships among spiritual well-being, quality of life, and psychological adjustment in women with breast cancer. Psycho-Oncology 1999; 8: 429–438. Dapueto, J., Servente, L., Francolino, C., & Hahn, E. Determinants of Quality of Life in Patients with Cancer: A South American Study. Cancer 2005; 103(5): 1072-1081. doi: 10.1002/cncr.20870. Edmondson, D., Park, C., Blank, T., Fenster, J., & Mills, M. Deconstructing spiritual well-being: existential well-being and HRQOL in cancer survivors. Psycho-Oncology 2008; 17: 161–169. doi: 10.1002/pon.1197. Fradelos, E., Tzavella, F., Koukia, E., Tsaras, K., Papathanasiou, I., Aroni, A., Alikari, V., Ralli, M., Bredle, J., & Zyga1, S. The translation, validation and cultural adaptation of functional assessment of chronic illness therapy – spiritual well-being 12 (FACIT-SP12) scale in Greek language. Mater Sociomed 2016; 28(3): 229-234. doi: 10.5455/msm.2016.28.229-234. Jarafi, N., Zamani, A., Lazenby, M., Farajzadegan, Z., Emami, H., & Loghmani, A. Translation and validation of the Persian version of the functional assessment of chronic illness therapy—Spiritual well-being scale (FACIT-Sp) among Muslim Iranians in treatment for cancer. Palliative and Supportive Care 2013; 11: 29–35. doi:10.1017/S1478951512000727. Kahraman, B.N., Pehlivan, S. The effect of spiritual well-being on illness perception of lung cancer patıents. Support Care Cancer 31 , 107 (2023). https://doi.org/10.1007/s00520-022-07527-z Krupski, T., Kwan, L., Fink, A., Sonn, G., Maliski, S., & Litwin, M. Spirituality Influences Health Related Quality of Life in Men with Prostate Cancer. Psycho-Oncology 2006; 15: 121–131. doi: 10.1002/pon.929. Lazenby, M., Khatib, J., 2, Al-Khair, F., & Neamat, M. Psychometric properties of the Functional Assessment of Chronic Illness Therapy—Spiritual Well-being (FACIT-Sp) in an Arabic-speaking, predominantly Muslim population. Psycho-Oncology 2011; 22(1): 220-227. doi: 10.1002/pon.2062. McClain, C., Rosenfeld, B., & Breitbart, W. Effect of spiritual well-being on end-of-life despair in terminally-ill cancer patients. The Lancet 2003; 361: 1603-1607. McClain-Jacobson, C., Rosenfeld, B., Rosenfeld, B., Kosinski, A., Pessin, H., Cimino, J., & Breitbart, W. Belief in an afterlife, spiritual well-being and end-of-life despair in patients with advanced cancer. General Hospital Psychiatry 2004; 26: 484-486. doi: 10.1016/j.genhosppsych. Machul M, Bredle J, Jurek K, Dobrowolska B. Psychometric Properties of the Polish Version of the FACIT-Sp-12: Assessing Spiritual Well-Being Among Patients with Chronic Diseases. Med Sci Monit. 2023 Nov 16;29:e941769. doi: 10.12659/MSM.941769. PMID: 37968895; PMCID: PMC10662162. Morgan, P., Gaston-Johansson, F., & Mock, V. Spiritual Well-Being, Religious Coping, and the Quality of Life of African American Breast Cancer Treatment: A Pilot Study. The ABNF Journal 2006; 73-77. Murphy, P., Canada, A., Fitchett, G., Stein, K., Portier, K., Crammer, C., & Peterman, A. An examination of the 3-factor model and structural invariance across racial/ethnic groups for the FACIT-Sp: a report from the American Cancer Society’s Study of Cancer Survivors-II (SCS-II). Psycho-Oncology 2010; 19: 264–272. doi: 10.1002/pon.1559. Perkins, E., Small, B., Balducci, L., Extermann, M., Robb, C., & Haley, W. Individual differences in well-being in older breast cancer survivors. Critical Reviews in Oncology/Hematology 2007; 62: 74-83. doi: 10.1016/j.critrevonc.2006.11.002. Peterman, A., Fitchett, G., Brady, M., & Hernandez, L. Measuring Spiritual Well-Being in People With Cancer: The Functional Assessment of Chronic Illness Therapy—Spiritual Well-Being Scale (FACIT-Sp). Annals of Behavioral Medicine 2002; 24(1):49–58. Rodin, G., Zimmermann, C., Rydall, A., Jones, J., Shepherd, A., Moore, M., Fruh, M., Donner, A., Gagliese, L. The Desire for Hastened Death in Patients with Metastatic Cancer. Journal of Pain and Symptom Management 2007; 33(6): 661-674. doi: 10.1016/j.jpainsymman. Rodin, G., Lo, C., Mikulincer, M., Donner, A., Gagliese, L., & Zimmermann, C. Pathways to distress: The multiple determinants of depression, hopelessness, and the desire for hasted death in metastatic cancer patients. Social Science & Medicine 2008; 68: 562–569. doi: 10.1016/j.socscimed. Schnoll, R., Harlow, L., & Brower, L. Spirituality, Demographic, and Disease Factors, and Adjustment to Cancer. Cancer Practice 2000; 8(6): 298-304. Stefanek, M., McDonald, P., & Hess, S. Religion, Spirituality and Cancer: Current Status and Methodological Challenges. Psycho-Oncology 2005; 14: 450–463. doi: 10.1002/pon.861. Stojković, S. & Prlić, N. Effect of faith on the acceptance of chronic disease patients. South Eastern Europe Health Sciences Journal 2012; 2(1): 52-61. Tate, D. & Forchheimer, M. Quality of Life, Life Satisfaction, and Spirituality: Comparing Outcomes Between Rehabilitation and Cancer Patients. American Journal of Physical Medicine & Rehabilitation 2002; 81(6): 400-410. Trevino, K., Pargament, K., Cotton, S., Leonard. A., Hahn, J., Caprini-Faigin, C., & Tsevat, J. Religious Coping and Physiological, Psychological, Social, and Spiritual Outcomes in Patients with HIV/AIDS: Cross-sectional and Longitudinal Findings. AIDS and Behavior 2010; 14: 379-389. doi: 10.1007/s10461-007-9332-6. Visser, A., Garssen, B., & Vingerhoets, A. Spirituality and well-being in cancer patients: a review. Psycho-Oncology 2010; 19: 565–572. doi: 10.1002/pon. Zavala, M., Maliski, S., Kwan, L., Fink, A., & Litwin, M. Spirituality and quality of life in low-income men with metastatic prostate cancer. Psycho-Oncology 2009; 18: 753–761. doi: 10.1002/pon.1460. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FACT-Sp Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being LEARN MORE FACIT-Sp-Ex Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being Expanded Version LEARN MORE FACIT-Pal Functional Assessment of Chronic Illness Therapy - Palliative Care LEARN MORE

View all available languages for this measure. BACK FHSI Languages Arabic Chinese - Simplified Dutch English French German Hebrew Hungarian Italian Japanese Korean Russian Spanish Thai

Download this measure in English. BACK PROMIS SF v1.0-Dyspnea-Severity 5a English Downloads Download PDF Download DOC

Download this measure in English. BACK FAPSI English Downloads Download PDF Download DOC

View all available languages for this measure. BACK FACT-ES Languages Afrikaans Arabic Armenian Bengali Burmese Chinese - Traditional Chinese - Simplified Croatian Czech Danish Dutch English Farsi Finnish French German Greek Gujarati Haitian Creole Hebrew Hindi Hungarian Italian Japanese Kannada Korean Malay Malayalam Marathi Mongolian Norwegian Odia Polish Portuguese Punjabi Romanian Russian Sepedi Serbian Spanish Swedish Tagalog Tamil Telugu Thai Turkish Ukrainian Urdu Vietnamese Zulu

FAHI Functional Assessment of HIV Infection LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview Below are the details for the FAHI measure: MEASURE NAME: Functional Assessment of HIV Infection (FAHI) VERSION: 4 NUMBER OF ITEMS: 47 PATIENT POPULATION: HIV patients 18 years and older RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Physical Well-Being, Emotional Well-Being/Living with HIV, Functional and Global Well-Being, Social Well-Being, Cognitive Functioning TIME FOR COMPLETION: 10-15 minutes SCORING: Manual scoring template, some items are reverse scored. Subscale scores and total scores available. SAS/SPSS algorithms available. RELATED MEASURES: FAMS , FACIT-Dyspnea , FACIT-TB DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the FAHI can be obtained by registering for permission. Users are not permitted to translate the FAHI without permission from FACIT.org. Permission from FACIT.org to translate the FAHI may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Cella, D., Gilet, H., Viala-Danten, M., Peeters, K., Dubois, D., & Martin, S. Effects of etravirine versus placebo on health-related quality of life in treatment-experienced HIV patients as measured by the Functional Assessment of Human Immunodeficiency Virus Infection (FAHI) questionnaire in the DUET trials. HIV Clinical Trials 2010; 11(1): 18-27. doi: 10.1310/hct1101-1. Hasanah, C., Zaliha, A., Mahiran, M. Factors influencing the quality of life in patients with HIV in Malaysia. Quality of Life Research 2010; 20(1): 91-100. doi: 10.1007/s11136-010-9729-y. Peterman, A.H., Cella, D., Mo, F., & McCain, N. Psychometric validation of the revised Functional Assessment of Human Immunodeficiency Virus Infection (FAHI) quality of life instrument. Quality of Life Research 1997; 6(6): 572-584. doi: 10.1023/a:1018416317546. Viala-Danten, M., Dubois, D., Gilet, H., Martin, S., Peeters, K., & Cella, D. Psychometric evaluation of the Functional Assessment of HIV Infection (FAHI) questionnaire and its usefulness in clinical trials. Quality Of Life Research.2010; 19(8): 1215-1227. doi: 10.1007/s11136-010-9674-9. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FAMS Functional Assessment of Multiple Sclerosis LEARN MORE FACIT-Dyspnea Functional Assessment of Chronic Illness Therapy - Dyspnea-10 item LEARN MORE FACIT-TB Functional Assessment of Chronic Illness Therapy - Tuberculosis LEARN MORE

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Download this measure in English. BACK FACT-EF English Downloads Download PDF Download DOC

View all available languages for this measure. BACK FACT-B+4 Languages Arabic Bengali Bulgarian Chinese - Simplified Chinese - Traditional Croatian Danish English French German Greek Gujarati Hindi Hungarian Indonesian Italian Japanese Kannada Latvian Malay Malayalam Marathi Portuguese Spanish Tamil Telugu Thai Turkish Ukrainian

FHSI Functional Assessment of Cancer Therapy Hepatobiliary Cancer Symptom Index - 8 Item Version For patients with Hepatobiliary cancer (liver, bile duct and pancreas); A FACT-Hepatobiliary Symptom Index (a subset of FACT-Hep containing 8 items) LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview Below are the details for the FHSI measure: MEASURE NAME: Functional Assessment of Cancer Therapy Hepatobiliary Cancer Symptom Index - 8 Item Version (FHSI) VERSION: 4 NUMBER OF ITEMS: 8 PATIENT POPULATION: Hepatobiliary cancer patients 18 years and older RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Hepatobiliary cancer symptom index TIME FOR COMPLETION: Less than 5 minutes SCORING: Manual scoring template, some items are reverse scored. Total scores possible. SAS/SPSS algorithms available. RELATED MEASURES: FACT-Hep , NFHSI-18 , FACT-G DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the FHSI can be obtained by registering for permission. Users are not permitted to translate the FHSI without permission from FACIT.org. Permission from FACIT.org to translate the FHSI may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Cella, D., Paul, D., Yount, S., Winn, R., Chang, C-H, Banik, D., & Weeks, J. What are the most important symptom targets when treating advanced cancer? A survey of providers in the National Comprehensive Cancer Network (NCCN). Cancer Investigation 2003; 21(4): 526-535. doi: 10.108/CNV-120022366. Cella, D., Rosenbloom, S., Beaumont, J., Yount, J., Paul, D., Hampton, D., Abernethy, A., Jacobsen, P., Syrjala, K., & Von Roenn, J. Development and validation of 11 symptom indexes to evaluate response to chemotherapy for advanced cancer. Journal of the National Comprehensive Cancer Network; 2011; 9(3): 268-278. doi: 10.6004/jnccn.2011.0026. Eid, S., Stromberg, A., Ames, S., Ellis, S., McMasters, K., & Martin, R. Assessment of symptom experience in patients undergoing hepatic resection or ablation. Cancer 2006; 107(11): 2715-2722. doi: 10.1002/cncr.22297. Poplin, E., Feng, Y., Berlin, J., Rothenberg, M., Hochster, H., Mitchell, E., Alberts, S., O’Dwyer, P., Haller, D., Catalano, P., Cella, D., & Benson, A. Phase III, Randomized Study of Gemcitabine and Oxaliplatin Versus Gemcitabine (fixed-dose rate infusion) Compared With Gemcitabine (30-minute infusion) in Patients With Pancreatic Carcinoma E6201: A Trial of the Eastern Cooperative Oncology Group. Journal of Clinical Oncolology 2009; 27:3778-3785. doi: 10.1200/JCO.2008.20.900. Yount, S., Cella, D., Webster, K., Heffernan, N., Chang, C.-H., Odom, L., & van Gool, R. Assessment of patient-reported clinical outcome in Pancreatic and other Hepatobiliary Cancers: The FACT Hepatobiliary Symptom Index. Journal of Pain & Symptom Management 2002; 24(1): 32-44. doi: 10.1016/s0885-3924(02)00422-0. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FACT-Hep Functional Assessment of Cancer Therapy – Hepatobiliary LEARN MORE NFHSI-18 National Comprehensive Cancer Network/Functional Assessment of Cancer Therapy Hepatobiliary Cancer Symptom Index - 18 Item Version LEARN MORE FACT-G Functional Assessment of Cancer Therapy – General LEARN MORE

View all available languages for this measure. BACK FKSI-15 Languages Afrikaans Arabic Bengali Bosnian Bulgarian Cebuano Chinese - Simplified Chinese - Traditional Croatian Czech Danish Dutch English Estonian Finnish French German Greek Gujarati Hebrew Hindi Hungarian Italian Japanese Kannada Korean Latvian Lithuanian Malay Malayalam Marathi Norwegian Polish Portuguese Punjabi Romanian Russian Serbian Sesotho Slovak Spanish Swedish Tagalog Tamil Telugu Thai Turkish Ukrainian Urdu Vietnamese Xhosa Zulu