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Download scoring documents for this measure. BACK FACT-PSI Scoring Downloads Download DOC

View all available languages for this measure. BACK NFBrSI-24 Languages Arabic Bengali Bulgarian Chinese - Simplified Chinese - Traditional Croatian Dutch English French German Gujarati Hebrew Hindi Hungarian Italian Japanese Kannada Korean Lithuanian Malay Malayalam Marathi Norwegian Polish Portuguese Punjabi Romanian Russian Serbian Slovene Spanish Tagalog Tamil Telugu Thai Urdu Vietnamese

FACT-L Functional Assessment of Cancer Therapy – Lung For patients with Lung cancer LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview The Functional Assessment of Cancer Therapy-Lung (FACT-L) Scale is a 36-item self-report instrument that measures multidimensional quality of life. It was developed from 1987-1993 and first published in 1995. The FACT-L meets a growing need for disease-specific health-related quality of life (HRQOL) questionnaires that address the general and unique concerns of patients diagnosed with lung cancer. Subsequent to its development, its results have been published in over 25 papers from over 15 unique data sets including over 4,000 people with lung cancer. Since 1995, studied groups have included cancer patients receiving chemotherapy, cancer patients receiving radiotherapy, terminally-ill patients and disease-free survivors. It is a widely-used, reliable and valid measure of multidimensional health status among people with lung cancer. It is brief, has clearly-written, easy-to-read questions, flexible modes of administration shown to be equivalent, and is translated in several dozen languages. MEASURE NAME: Functional Assessment of Cancer Therapy – Lung (FACT-L) VERSION: 4 NUMBER OF ITEMS: 36 PATIENT POPULATION: Lung cancer patients 18 years and older RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Physical Well-Being, Social/Family Well-Being, Emotional Well-Being, Functional Well-Being, Lung Cancer Subscale TIME FOR COMPLETION: 10-15 minutes SCORING: Manual scoring template, some items are reverse scored. Subscale scores, total scores and TOI scores possible. SAS/SPSS algorithms available. RELATED MEASURES: FLSI , NFLSI-17 , FLSI-12 , FACT-PSI , FACT-LCS DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the FACT-L can be obtained by registering for permission. Users are not permitted to translate the FACT-L without permission from FACIT.org. Permission from FACIT.org to translate the FACT-L may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Butt, Z., Webster, K., Eisenstein, A., Beaumont, J., Eton, D., Masters, G., & Cella, D. Quality of life in lung cancer: the validity and cross-cultural applicability of the Functional Assessment of Cancer Therapy – Lung Scale. Hematology/Oncology Clinics of North America 2005; 19: 389-420. doi: 10.1016/j.hoc.2005.02.009. Cella, D., Eton, D., Hensing, T., Masters, G., & Parasuraman, B. Relationship between symptom change, objective tumor measurements, and performance status during chemotherapy for advanced lung cancer. Clinical Lung Cancer 2008; 9(1): 51-58. doi: 10.3816/CLC.2008.n.009. Cella, D.F., Bonomi, A.E., Lloyd S.R., Tulsky, D.S., Kaplan, E., & Bonomi, P. Reliability and validity of the Functional Assessment of Cancer Therapy - Lung (FACT-L) quality of life instrument. Lung Cancer 1995; 12: 199-220. Chang, C, Cella, D., Masters, G.A., Laliberte, N., O’Brien P., Peterman, A., & Shevrin, D. Real-time clinical application of quality of life assessment in Lung Cancer. Clinical Lung Cancer 2002; 4(2): 104-109. doi: 10.3816/CLC.2002.n.020. Davis, K., Yount, S., Del Ciello, K., Whalen, M., Khan, S., Bass, M., Du, H., Eton, D., Masters, G., Hensing, T., & Cella, D. An innovative symptom monitoring tool for people with advanced lung cancer: A pilot demonstration. Journal of Supportive Oncology 2007; 5(8): 381-387. Juliana, F., Jardim, J., Fernandes, A., Jamnik, S., & Santoro, I. Reliability of the Brazilian version of the Functional Assessment of Cancer Therapy-Lung (FACT-L) and the FACT-Lung Symptom Index (FLSI). Clinics 2010; 65(12):1247-1251. doi: :10.1590/S1807-59322010001200005. Jennifer S. Temel, J., Greer, J., Muzikansky, A., Gallagher, E., Admane, S., Jackson, V., Dahlin, C., Blinderman, C., Jacobsen, J., Pirl, W., Billings, J. & Lynch, T. Early Palliative Care for Patients with Metastatic Non–Small-Cell Lung Cancer. The New England Journal of Medicine 2010; doi: 363:733-742. 10.1056/NEJMoa1000678. Yaskevich, V., Marochkova, V., Nikitins, G., & Sharf, I. The Influence of anesthesia type on the life qualify of women after radical mastectomy. VESTNIK VITEBSKOGO GOSUDARSTVENNOGO MEDITSINSKOGO UNIVERSITETA 2017; 16(2): 85-90. doi: 10.22263/2312-4156.2017.2.85. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FLSI Functional Assessment of Cancer Therapy Lung Cancer Symptom Index - 6 Item Version LEARN MORE NFLSI-17 National Comprehensive Cancer Network/Functional Assessment of Cancer Therapy Lung Cancer Symptom Index - 17 Item Version LEARN MORE FLSI-12 Functional Assessment of Cancer Therapy Lung Cancer Symptom Index - 12 Item Version LEARN MORE

View all available languages for this measure. BACK FACT-CSI Languages Czech Danish Dutch English French German Greek Hungarian Italian Polish Portuguese Spanish Swedish

Download scoring documents for this measure. BACK FACT-En Scoring Downloads Download DOC

View all available languages for this measure. BACK FACT-Taxane Languages Afrikaans Arabic Bengali Bosnian Chinese - Simplified Chinese - Traditional Czech Danish Dutch English Finnish French German Greek Gujarati Hebrew Hungarian Italian Japanese Kannada Korean Latvian Macedonian Malay Malayalam Marathi Norwegian Polish Portuguese Romanian Russian Serbian Spanish Swedish Tagalog Tamil Thai Turkish

Download scoring documents for this measure. BACK FACT-Bl Scoring Downloads Download DOC

View all available languages for this measure. BACK FACT-M Languages Albanian Afrikaans Arabic Bulgarian Chinese – Simplified Chinese – Traditional Czech Danish Dutch English Estonian Finnish French Georgian German Greek Hebrew Hungarian Italian Japanese Korean Latvian Lithuanian Malay Norwegian Polish Portuguese Romanian Russian Sepedi Serbian Sesotho Setswana Slovak Slovene Spanish Swedish Thai Turkish Ukrainian Vietnamese Xhosa Zulu

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PROMIS Pool v1.0 - Dyspnea Task Avoidance Patient Reported Outcomes Measurement Information System Pool - Dyspnea Task Avoidance For patients with dyspnea LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview Below are the details on the PROMIS Pool v1.0 - Dyspnea Task Avoidance MEASURE NAME: PROMIS Pool v1.0 - Dyspnea Task Avoidance VERSION: 1 NUMBER OF ITEMS: 3 PATIENT POPULATION: Dyspnea patients 18 years and older RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic For permission to implement and administer the measure electronically, please visit: https://www.healthmeasures.net/implement-healthmeasures/administration-platforms ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Dyspnea Task Avoidance TIME FOR COMPLETION: Less than 5 minutes SCORING: PROMIS Scoring Service: http://www.healthmeasures.net/score-and-interpret/calculate-scores/scoring-instructions RELATED MEASURES: FACIT-Dyspnea , PROMIS Pool v1.0 - Dyspnea Time Extension , PROMIS Pool v1.0 - Dyspnea Activity Requirements DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the PROMIS Pool v1.0 - Dyspnea Task Avoidance can be obtained by registering for permission. Users are not permitted to translate the PROMIS Pool v1.0 - Dyspnea Task Avoidance without permission from FACIT.org. Permission from FACIT.org to translate the PROMIS Pool v1.0 - Dyspnea Task Avoidance may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Choi, S., Victorson, D., Yount, S., Anton, S., & Cella, D. Development of a conceptual framework and calibrated item banks to measure patient reported dyspnea severity and related functional limitations. Value in Health 2011; 14: 291-306. Ruo, B., Choi, S., Baker, D., Grady, K., & Cella,D. Development and validation of a computer adaptive test measuring dyspnea in heart failure. Journal of Cardiac Failure 2010; 16(8): 659-668. doi: 10.1016/j.cardfail.2010.03.002. Victorson, D., Anton, S., Hamilton, A., Yount, S., & Cella, D. A conceptual model of the experience of dyspnea and functional limitations in COPD. Value in Health 2009; 12(6): 1018-1025. Yount, S., Choi, S., Victorson, D., Ruo, B., Ray, D., Cella, D., Anton, S., & Hamilton, A. (2011) Brief, valid measures of dyspnea and related functional limitations in chronic obstructive pulmonary disease (COPD). Value in Health 2011; 14: 307-315. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FACIT-Dyspnea Functional Assessment of Chronic Illness Therapy - Dyspnea-10 item LEARN MORE PROMIS Pool v1.0 - Dyspnea Time Extension Patient-Reported Outcomes Measurement Information System Pool - Dyspnea Time Extension LEARN MORE PROMIS Pool v1.0 - Dyspnea Activity Requirements Patient-Reported Outcomes Measurement Information System Pool - Dyspnea Activity Requirements LEARN MORE

FACT-M Functional Assessment of Cancer Therapy – Melanoma For patients with melanoma LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview A systematic review of the literature on quality of life in melanoma patients suggested an overwhelming need for a disease-specific subscale. The Functional Assessment of Cancer Therapy (FACT–Melanoma) was developed to meet this need. This instrument was developed in three stages. In stage I, the literature was comprehensively reviewed, and over 300 cancer-specific items from the Functional Assessment of Chronic Illness Therapy (FACIT) item bank were examined to identify items of potential relevance to melanoma patients. In stage II, 20 melanoma experts identified questions that were relevant to melanoma patients to be included in a pilot questionnaire. In stage III, the pilot measure and a semi-structured interview to assess item comprehension, relevance, and overall content were administered to 40 patients with various stages of melanoma. In all, 97 items were culled from the literature and the FACIT item bank; after items were reviewed and evaluated. After final revisions were made, the FACT-M tool included 24 items encompassing three QOL domains: 20 items relate to physical well-being, 3 to emotional well-being, and 1 to social well-being. The face and content validity of the FACT–M was confirmed in melanoma patients and by professionals. MEASURE NAME: Functional Assessment of Cancer Therapy – Melanoma (FACT-M) VERSION: 4 NUMBER OF ITEMS: 51 PATIENT POPULATION: Melanoma patients 18 years and older RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Physical Well-Being, Social/Family Well-Being, Emotional Well-Being, Functional Well-Being, Melanoma Subscale TIME FOR COMPLETION: 10-15 minutes SCORING: Manual scoring template, some items are reverse scored. Subscale scores, total scores and TOI scores possible. RELATED MEASURES: FACT-G , FACT-G7 , FACT-B DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the FACT-M can be obtained by registering for permission. Users are not permitted to translate the FACT-M without permission from FACIT.org. Permission from FACIT.org to translate the FACT-M may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Askew, R., Xing, Y., Plamer, J., Cella, D., Moye, L., & Cormier, J. Evaluating minimal important differences for the FACT-Melanoma quality of life questionnaire. Value in Health 2009; 12(8): 1144–1150. doi: 10.1111/j.1524-4733.2009.00570.x. Bharmal, M. Fofana, F., Barbosa, C., Williams, P., Mahnke, L., Marrel, A., & Schlichting, M. Psychometric properties of the FACT-M questionnaire in patients with Merkel cell carcinoma. Health and Quality of Life Outcomes 2017; 15:247. doi: 10.1186/s12955-017-0815-5. Bagge, AS.L., Ben-Shabat, I., Belgrano, V. et al. Health-Related Quality of Life for Patients Who have In-Transit Melanoma Metastases Treated with Isolated Limb Perfusion. Ann Surg Oncol 23, 2062–2069 (2016). https://doi.org/10.1245/s10434-016-5103-9 Cormier, J., Davidson, L, Webster, K., Cella, D., Xing, Y., Ross, M., Gershenwald, J., Lee, J., Mansfield, P., Camacho, L., Kim, K., Papadopoulos, N., & Palmer, J. Prospective assessment of the reliability, validity, and sensitivity to change of the functional assessment of cancer therapy-melanoma (FACT-Melanoma) questionnaire. Cancer 2008; 112(10): 2249-2257. doi: 10.1002/cncr.23424. Cormier, J., Davidson, L., Xing, Y., Webster, K., & Cella, D. Measuring quality of life in patients with melanoma: Development of the FACT-Melanoma subscale. Journal of Supportive Oncology 2005; 3(2): 139-145. Lindqvist Bagge AS, Wesslau H, Cizek R, Holmberg CJ, Moncrieff M, Katsarelias D, Carlander A, Olofsson Bagge R. Health-related quality of life using the FACT-M questionnaire in patients with malignant melanoma: A systematic review. Eur J Surg Oncol. 2021 Sep 20:S0748-7983(21)00739-3. doi: 10.1016/j.ejso.2021.09.013. Epub ahead of print. PMID: 34600786. Robinson, D., Cormier, J., Zhao, N., Uhlar, C., Revicki, D., & Cella, D. Health-related quality of life among patients with metastatic melanoma: results from an international Phase 2 multicenter study. Melanoma Research 2012; 22(1):54–62. doi: 10.1097/CMR.0b013e32834d3da0. Swartz, R., Baum, G., Askew, R., Palmer, J., Ross, M., & Cormier, J. Reducing patient burden to the FACT-Melanoma quality-of-life questionnaire. Melanoma research 2012; 22(2): 158-63. doi: 10.1097/CMR.0b013e3283511dbf. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FACT-G Functional Assessment of Cancer Therapy – General LEARN MORE FACT-G7 Functional Assessment of Cancer Therapy – General – 7 Item Version LEARN MORE FACT-B Functional Assessment of Cancer Therapy – Breast LEARN MORE

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