Download scoring documents for this measure. BACK FACIT-Pal Scoring Downloads Download DOC

Download scoring documents for this measure. BACK FACT-LCS Scoring Downloads Download DOC

Download scoring documents for this measure. BACK NFHSI-18 Scoring Downloads Download DOC

FACT-E Functional Assessment of Cancer Therapy – Esophageal For patients with Esophageal cancer LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview Below are the details for the FACT-E measure: MEASURE NAME: Functional Assessment of Cancer Therapy – Esophageal (FACT-E) VERSION: 4 NUMBER OF ITEMS: 44 PATIENT POPULATION: Esophageal cancer patients 18 years and older RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Physical Well-Being, Social/Family Well-Being, Emotional Well-Being, Functional Well-Being, Esophageal Cancer Subscale TIME FOR COMPLETION: 10-15 minutes SCORING: Manual scoring template, some items are reverse scored. Subscale scores, total scores and TOI scores possible. SAS/SPSS algorithms available. RELATED MEASURES: FACT-HN , FHNSI , NFHNSI-22 DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the FACT-E can be obtained by registering for permission. Users are not permitted to translate the FACT-E without permission from FACIT.org. Permission from FACIT.org to translate the FACT-E may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Darling, G., Eton, D., Sulman, J., Casson, A., & Cella, D. Validation of the Functional Assessment of Cancer Therapy Esophageal Cancer Subscale FACT-E. Cancer 2006; 107(4): 854-863. doi: 10.1002/cncr.22055. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FACT-HN Functional Assessment of Cancer Therapy – Head & Neck LEARN MORE FHNSI Functional Assessment of Cancer Therapy Head & Neck Cancer Symptom Index - 10 Item Version LEARN MORE NFHNSI-22 National Comprehensive Cancer Network/Functional Assessment of Cancer Therapy Head & Neck Cancer Symptom Index - 22 Item Version LEARN MORE

View all available languages for this measure. BACK FACIT-Pal-14 Languages Bengali Burmese Chinese - Simplified Chinese – Traditional Dutch English Farsi German Greek Hindi Indonesian Japanese Malay Malayalam Portuguese Sinhala Spanish Swahili Tagalog Tamil Telugu Thai Turkish Vietnamese

View all available languages for this measure. BACK FACT-ICM Languages Chinese - Simplified Chinese - Traditional English Dutch French German Italian Korean Spanish Swedish

Download scoring documents for this measure. BACK FACT-CNS Scoring Downloads Download DOC

View all available languages for this measure. BACK FAPSI Languages Dutch English French German Italian Korean Portuguese Swedish Spanish

peds FAACT Pediatric Functional Assessment of Anorexia/Cachexia Treatment LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview Below are the details for the peds FAACT measure: MEASURE NAME: Pediatric Functional Assessment of Anorexia/Cachexia Treatment (peds FAACT) VERSION: 1 NUMBER OF ITEMS: Child - 37 items Parent of child - 37 items Adolescent - 40 items Parent of adolescent - 40 items PATIENT POPULATION: Pediatric cancer patients 7-18 years old experiencing anorexia/cachexia RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Physical Well-Being, Emotional Well-Being & Illness Experience, Social and Family Well-Being, Anorexia/cachexia subscale TIME FOR COMPLETION: 10-15 minutes SCORING: None RELATED MEASURES: FAACT , peds FACIT-F , peds FACT-Br DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the peds FAACT can be obtained by registering for permission. Users are not permitted to translate the peds FAACT without permission from FACIT.org. Permission from FACIT.org to translate the peds FAACT may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FAACT Functional Assessment of Anorexia/Cachexia Treatment LEARN MORE peds FACIT-F Pediatric Functional Assessment of Chronic Illness Therapy – Fatigue LEARN MORE peds FACT-Br Pediatric Functional Assessment of Cancer Therapy – Brain LEARN MORE

View all available languages for this measure. BACK FACT-LCS Languages Arabic Bengali Chinese - Simplified Chinese - Traditional Croatian Czech Danish Dutch English Finnish French German Greek Gujarati Hebrew Hindi Hungarian Italian Kannada Korean Malay Malayalam Marathi Polish Portuguese Punjabi Russian Spanish Swedish Tamil Telugu Thai Ukrainian Urdu

Download scoring documents for this measure. BACK FACIT-TS-PS Scoring Downloads Download DOC

FACT-ICM Functional Assessment of Cancer Therapy – Immune Checkpoint Modulator For patients receiving immunotherapy treatment LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview Derived from FACIT's item library for the assessment of patient-reported adverse events for immune checkpoint modulators, the FACT-ICM was developed to measure QOL in patients being treated with immunotherapy. The larger item bank can be accessed by searching "immunotherapy" within FACIT's Searchable Item Library. MEASURE NAME: Functional Assessment of Cancer Therapy – Immune Checkpoint Modulator VERSION: 4 NUMBER OF ITEMS: 52 PATIENT POPULATION: Cancer patients 18 years and older receiving immunotherapy treatment RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Physical Well-Being, Social/Family Well-Being, Emotional Well-Being, Functional Well-Being, Immune Checkpoint Modulator Subscale TIME FOR COMPLETION: 10-15 minutes SCORING: Manual scoring template, some items are reverse scored. Subscale scores, total scores and TOI scores possible. RELATED MEASURES: FACT-G , FACT-M , FACT-L DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the FACT-ICM can be obtained by registering for permission. Users are not permitted to translate the FACT-ICM without permission from FACIT.org. Permission from FACIT.org to translate the FACT-ICM may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Hansen AR, Ala-Leppilampi K, McKillop C, Siu LL, Bedard PL, Abdul Razak AR, Spreafico A, Sridhar SS, Leighl N, Butler MO, Hogg D, Sacher A, Oza AM, Al-Agha R, Maurice C, Chan CT, Shapera S, Feld JJ, Nisenbaum R, Webster K, Cella D, Parsons J. Development of the Functional Assessment of Cancer Therapy-Immune Checkpoint Modulator (FACT-ICM): A toxicity subscale to measure quality of life in patients with cancer who are treated with ICMs. Cancer. 2020 Apr 1;126(7):1550-1558. doi: 10.1002/cncr.32692. Epub 2020 Jan 8. PMID: 31914209. Webster KA, O’Connor ML, Hansen AR, Kircher S, Jim HSL, Dicker AP, Janda M, Ala-leppilampi K, Bingham CO III, Feliciano J, Henry NL, Steffen McLouth LE, Cella D. Development of a Functional Assessment of Chronic Illness Therapy item library and primary symptom list for the assessment of patient-reported adverse events associated with immune checkpoint modulators. J Cancer Metastasis Treat 2020;6:8. http://dx.doi.org/10.20517/2394-4722.2019.38. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FACT-G Functional Assessment of Cancer Therapy – General LEARN MORE FACT-M Functional Assessment of Cancer Therapy – Melanoma LEARN MORE FACT-L Functional Assessment of Cancer Therapy – Lung LEARN MORE