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Download scoring documents for this measure. BACK FACT-Lym Scoring Downloads Download DOC

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View all available languages for this measure. BACK FACIT-Sp-EX Languages English Hindi Japanese Malayalam Polish Portuguese Slovene Spanish

PROMIS Pool v1.0 - Dyspnea Characteristics Patient Reported Outcomes Measurement Information System Pool - Dyspnea Characteristics For patients with dyspnea LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview Below are the details on the PROMIS Pool v1.0 - Dyspnea Characteristics MEASURE NAME: PROMIS Pool v1.0 - Dyspnea Characteristics VERSION: 1 NUMBER OF ITEMS: 5 PATIENT POPULATION: Dyspnea patients 18 years and older RECALL PERIOD: Past 7 days RESPONSE SCALE: 0-10 Rating Scale DATA COLLECTION: Paper and electronic For permission to implement and administer the measure electronically, please visit: https://www.healthmeasures.net/implement-healthmeasures/administration-platforms ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Dyspnea Characteristics TIME FOR COMPLETION: Less than 5 minutes SCORING: PROMIS Scoring Service: http://www.healthmeasures.net/score-and-interpret/calculate-scores/scoring-instructions RELATED MEASURES: FACIT-Dyspnea , PROMIS Pool v1.0 - Dyspnea Emotional Response , PROMIS Pool v1.0 - Dyspnea Task Avoidance DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the PROMIS Pool v1.0 - Dyspnea Characteristics can be obtained by registering for permission. Users are not permitted to translate the PROMIS Pool v1.0 - Dyspnea Characteristics without permission from FACIT.org. Permission from FACIT.org to translate the PROMIS Pool v1.0 - Dyspnea Characteristics may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Choi, S., Victorson, D., Yount, S., Anton, S., & Cella, D. Development of a conceptual framework and calibrated item banks to measure patient reported dyspnea severity and related functional limitations. Value in Health 2011; 14: 291-306. Ruo, B., Choi, S., Baker, D., Grady, K., & Cella,D. Development and validation of a computer adaptive test measuring dyspnea in heart failure. Journal of Cardiac Failure 2010; 16(8): 659-668. doi: 10.1016/j.cardfail.2010.03.002. Victorson, D., Anton, S., Hamilton, A., Yount, S., & Cella, D. A conceptual model of the experience of dyspnea and functional limitations in COPD. Value in Health 2009; 12(6): 1018-1025. Yount, S., Choi, S., Victorson, D., Ruo, B., Ray, D., Cella, D., Anton, S., & Hamilton, A. (2011) Brief, valid measures of dyspnea and related functional limitations in chronic obstructive pulmonary disease (COPD). Value in Health 2011; 14: 307-315. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FACIT-Dyspnea Functional Assessment of Chronic Illness Therapy - Dyspnea-10 item LEARN MORE PROMIS Pool v1.0 - Dyspnea Emotional Response Patient-Reported Outcomes Measurement Information System Pool - Dyspnea Emotional Response LEARN MORE PROMIS Pool v1.0 - Dyspnea Task Avoidance Patient-Reported Outcomes Measurement Information System Pool - Dyspnea Task Avoidance LEARN MORE

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View all available languages for this measure. BACK PROMIS Item Bank v1.0 Dyspnea Severity Languages English

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FACT-Hep Functional Assessment of Cancer Therapy – Hepatobiliary For patients with Hepatobiliary cancer (liver, bile duct and pancreas) LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview The Functional Assessment of Cancer Therapy–Hepatobiliary (FACT-Hep) is a 45-item self-report instrument designed to measure health-related quality of life in patients with hepatobiliary cancers. The FACT-Hep consists of the 27-item FACT-G, which assesses generic HRQL concerns, and a validated 18-item Hepatobiliary Subscale (HS), which assesses disease-specific issues. Its development followed a four-phase process of item generation, item reduction, scale construction, and reliability/validity testing. Two independent samples were studied: item generation (sample 1; n = 30) and reliability/validity testing (sample 2; n = 51). All subscales and aggregated scores show high internal consistency at initial assessment (Cronbach’s alpha range, 0.72 to 0.94) and retesting (Cronbach’s alpha range, 0.81 to 0.94). Measurement stability over a 3- to 7-day period is also high for all aggregated scales (test-retest correlation range, 0.84 to 0.91; intraclass correlation coefficient range, 0.82 to 0.90). Convergent and divergent validity were demonstrated by examining relationships between FACT subscales and mood, social support, and social desirability. MEASURE NAME: Functional Assessment of Cancer Therapy – Hepatobiliary (FACT-Hep) VERSION: 4 NUMBER OF ITEMS: 45 PATIENT POPULATION: Hepatobiliary cancer patients 18 years and older RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Physical Well-Being, Social/Family Well-Being, Emotional Well-Being, Functional Well-Being, Hepatobiliary Cancer Subscale TIME FOR COMPLETION: 10-15 minutes SCORING: Manual scoring template, some items are reverse scored. Subscale scores, total scores and TOI scores possible. SAS/SPSS algorithms available. RELATED MEASURES: FHSI , NFHSI-18 , FACT-Ga DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the FACT-Hep can be obtained by registering for permission. Users are not permitted to translate the FACT-Hep without permission from FACIT.org. Permission from FACIT.org to translate the FACT-Hep may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Heffernan, N., Cella, D., Webster, K., Odom, L., Matone, M., Passik, S., Bookbinder, M., Fong, Y., Jarnagin, W., & Blumgart, L. Measuring health-related quality of life in patients with Hepatobiliary Cancers: The Functional Assessment of Cancer Therapy – Hepatobiliary (FACT-Hep) questionnaire. Journal of Clinical Oncology 2002; 20(9): 2229-2239. doi: 10.1200/JCO.2002.07.093. Salem, R., Gilbertsen, M., Butt, Z., Memon, K., Vouche, M., Rickey, R., Bakers, T., Abecassis, M., Atassi, R., Riaz, A., Cella, D., Burns, J., Larson, A., Benson, A., Mulcahy, M., Kulik, L., & Lewandowski, R. Prospective quality-of-life study in hepatocellular carcinoma patients treated with chemoembolization or radioembolization. Clinical Gastroenterology and Hepatology 2013; 11(10): 1358-1365. doi: 10.1016/j.cgh.2013.04.028. Steel, J., Nadeau, K., Olek, M., & Carr, B. Preliminary results of an individually tailored psychosocial intervention for patients with advanced hepatobiliary carcinoma. Journal of Psychosocial Oncology 2007; 25(3): 19-42. doi: 10.1300/J077v25n03_02. Steel, J., Eton, D., Cella, D., Olek, M., & Carr, B. Clinically meaningful changes in health-related quality of life in patients diagnosed with hepatobiliary carcinoma. Annals of Oncology 2006; 17: 304-312. doi:10.1093/annonc/mdj072. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FHSI Functional Assessment of Cancer Therapy Hepatobiliary Cancer Symptom Index - 8 Item Version LEARN MORE NFHSI-18 National Comprehensive Cancer Network/Functional Assessment of Cancer Therapy Hepatobiliary Cancer Symptom Index - 18 Item Version LEARN MORE FACT-Ga Functional Assessment of Cancer Therapy – Gastric LEARN MORE

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