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BESS BCPT Eight Symptom Scale A symptom measure for breast cancer LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview This brief survey of breast cancer symptoms was developed and administered to women enrolled in the Breast Cancer Prevention Trial (BCPT) conducted by the National Surgical Adjuvant Breast and Bowel Project. MEASURE NAME: BCPT Eight Symptom Scale (BESS) VERSION: 1 NUMBER OF ITEMS: 30 PATIENT POPULATION: Breast cancer patients 18 years and older RECALL PERIOD: Past four weeks RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: None TIME FOR COMPLETION: Not available SCORING: Manual scoring template. Subscale scores possible. RELATED MEASURES: FACT-B , FBSI , NFBSI-16 DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the BESS can be obtained when licensing the measure. Users are not permitted to translate the BESS without prior permission from FACIT.org. Permission may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor of the BESS. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Cella D, Land SR, Chang CH, Day R, Costantino JP, Wolmark N, Ganz PA. Symptom measurement in the Breast Cancer Prevention Trial (BCPT) (P-1): psychometric properties of a new measure of symptoms for midlife women. Breast Cancer Res Treat. 2008 Jun;109(3):515-26. doi: 10.1007/s10549-007-9682-9. Epub 2007 Sep 13. PMID: 17851765. Terhorst, L., Blair-Belansky, H., Moore, P. J., & Bender, C. (2011). Evaluation of the psychometric properties of the BCPT Symptom Checklist with a sample of breast cancer patients before and after adjuvant therapy. Psycho-oncology , 20 (9), 961–968. https://doi.org/10.1002/pon.1806. LICENSE THIS MEASURE Related Measures Related Measures FACT-B Functional Assessment of Cancer Therapy - Breast LEARN MORE FBSI FACT Breast Symptom Index LEARN MORE NFBSI-16 National Comprehensive Cancer Network/Functional Assessment of Cancer Therapy Breast Cancer Symptom Index - 16 Item Version LEARN MORE

FACT-Hep Functional Assessment of Cancer Therapy – Hepatobiliary For patients with Hepatobiliary cancer (liver, bile duct and pancreas) LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview The Functional Assessment of Cancer Therapy–Hepatobiliary (FACT-Hep) is a 45-item self-report instrument designed to measure health-related quality of life in patients with hepatobiliary cancers. The FACT-Hep consists of the 27-item FACT-G, which assesses generic HRQL concerns, and a validated 18-item Hepatobiliary Subscale (HS), which assesses disease-specific issues. Its development followed a four-phase process of item generation, item reduction, scale construction, and reliability/validity testing. Two independent samples were studied: item generation (sample 1; n = 30) and reliability/validity testing (sample 2; n = 51). All subscales and aggregated scores show high internal consistency at initial assessment (Cronbach’s alpha range, 0.72 to 0.94) and retesting (Cronbach’s alpha range, 0.81 to 0.94). Measurement stability over a 3- to 7-day period is also high for all aggregated scales (test-retest correlation range, 0.84 to 0.91; intraclass correlation coefficient range, 0.82 to 0.90). Convergent and divergent validity were demonstrated by examining relationships between FACT subscales and mood, social support, and social desirability. MEASURE NAME: Functional Assessment of Cancer Therapy – Hepatobiliary (FACT-Hep) VERSION: 4 NUMBER OF ITEMS: 45 PATIENT POPULATION: Hepatobiliary cancer patients 18 years and older RECALL PERIOD: Past 7 days RESPONSE SCALE: 5 point Likert-type scale DATA COLLECTION: Paper and electronic ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Physical Well-Being, Social/Family Well-Being, Emotional Well-Being, Functional Well-Being, Hepatobiliary Cancer Subscale TIME FOR COMPLETION: 10-15 minutes SCORING: Manual scoring template, some items are reverse scored. Subscale scores, total scores and TOI scores possible. SAS/SPSS algorithms available. RELATED MEASURES: FHSI , NFHSI-18 , FACT-Ga DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the FACT-Hep can be obtained by registering for permission. Users are not permitted to translate the FACT-Hep without permission from FACIT.org. Permission from FACIT.org to translate the FACT-Hep may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Heffernan, N., Cella, D., Webster, K., Odom, L., Matone, M., Passik, S., Bookbinder, M., Fong, Y., Jarnagin, W., & Blumgart, L. Measuring health-related quality of life in patients with Hepatobiliary Cancers: The Functional Assessment of Cancer Therapy – Hepatobiliary (FACT-Hep) questionnaire. Journal of Clinical Oncology 2002; 20(9): 2229-2239. doi: 10.1200/JCO.2002.07.093. Salem, R., Gilbertsen, M., Butt, Z., Memon, K., Vouche, M., Rickey, R., Bakers, T., Abecassis, M., Atassi, R., Riaz, A., Cella, D., Burns, J., Larson, A., Benson, A., Mulcahy, M., Kulik, L., & Lewandowski, R. Prospective quality-of-life study in hepatocellular carcinoma patients treated with chemoembolization or radioembolization. Clinical Gastroenterology and Hepatology 2013; 11(10): 1358-1365. doi: 10.1016/j.cgh.2013.04.028. Steel, J., Nadeau, K., Olek, M., & Carr, B. Preliminary results of an individually tailored psychosocial intervention for patients with advanced hepatobiliary carcinoma. Journal of Psychosocial Oncology 2007; 25(3): 19-42. doi: 10.1300/J077v25n03_02. Steel, J., Eton, D., Cella, D., Olek, M., & Carr, B. Clinically meaningful changes in health-related quality of life in patients diagnosed with hepatobiliary carcinoma. Annals of Oncology 2006; 17: 304-312. doi:10.1093/annonc/mdj072. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FHSI Functional Assessment of Cancer Therapy Hepatobiliary Cancer Symptom Index - 8 Item Version LEARN MORE NFHSI-18 National Comprehensive Cancer Network/Functional Assessment of Cancer Therapy Hepatobiliary Cancer Symptom Index - 18 Item Version LEARN MORE FACT-Ga Functional Assessment of Cancer Therapy – Gastric LEARN MORE

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View all available languages for this measure. BACK PROMIS SF v1.0-Dyspnea-Functional Limitations 5a Languages Arabic Afrikaans Bengali Bulgarian Chinese - Simplified Chinese - Traditional Czech Danish Dutch English Finnish French German Greek Gujarati Hebrew Hindi Hungarian Italian Japanese Kannada Korean Malay Malayalam Marathi Norwegian Polish Portuguese Punjabi Romanian Russian Serbian Slovak Slovene Spanish Swedish Tagalog Tamil Telugu Thai Turkish Ukrainian Urdu Xhosa Zulu

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