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Download this measure in English. BACK PROMIS SF v1.0-Dyspnea-Functional Limitations 10a English Downloads Download PDF Download DOC

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PROMIS Item Bank v1.0 - Dyspnea Severity Patient Reported Outcomes Measurement Information System Item Bank - Dyspnea Severity For patients with dyspnea LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview A bank of dyspnea items. MEASURE NAME: PROMIS Item Bank v1.0 - Dyspnea Severity VERSION: 1 NUMBER OF ITEMS: 33 PATIENT POPULATION: Dyspnea patients 18 years and older RECALL PERIOD: Past 7 days RESPONSE SCALE: 4 point Likert-type scale DATA COLLECTION: Paper and electronic For permission to implement and administer the measure electronically, please visit: https://www.healthmeasures.net/implement-healthmeasures/administration-platforms ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Severity TIME FOR COMPLETION: 10-15 minutes SCORING: PROMIS Scoring Service: http://www.healthmeasures.net/score-and-interpret/calculate-scores/scoring-instructions RELATED MEASURES: FACIT-Dyspnea , PROMIS SF v1.0 – Dyspnea-Severity 10a , PROMIS SF v1.0 – Dyspnea-Severity 5b DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the PROMIS Item Bank v1.0 - Dyspnea Severity can be obtained by registering for permission. Users are not permitted to translate the PROMIS Item Bank v1.0 - Dyspnea Severity without permission from FACIT.org. Permission from FACIT.org to translate the PROMIS Item Bank v1.0 - Dyspnea Severity may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Choi, S., Victorson, D., Yount, S., Anton, S., & Cella, D. Development of a conceptual framework and calibrated item banks to measure patient reported dyspnea severity and related functional limitations. Value in Health 2011; 14: 291-306. Ruo, B., Choi, S., Baker, D., Grady, K., & Cella,D. Development and validation of a computer adaptive test measuring dyspnea in heart failure. Journal of Cardiac Failure 2010; 16(8): 659-668. doi: 10.1016/j.cardfail.2010.03.002. Victorson, D., Anton, S., Hamilton, A., Yount, S., & Cella, D. A conceptual model of the experience of dyspnea and functional limitations in COPD. Value in Health 2009; 12(6): 1018-1025. Yount, S., Choi, S., Victorson, D., Ruo, B., Ray, D., Cella, D., Anton, S., & Hamilton, A. (2011) Brief, valid measures of dyspnea and related functional limitations in chronic obstructive pulmonary disease (COPD). Value in Health 2011; 14: 307-315. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FACIT-Dyspnea Functional Assessment of Chronic Illness Therapy - Dyspnea-10 item LEARN MORE PROMIS SF v1.0 – Dyspnea Severity 10a Patient-Reported Outcomes Measurement Information System Short Form - Dyspnea Severity 10a LEARN MORE PROMIS SF v1.0 – Dyspnea Severity 5b Patient-Reported Outcomes Measurement Information System Short Form - Dyspnea Severity 5b LEARN MORE

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“Utilities” can broadly be defined as methods to measure health outcomes using preferences (either an individual’s or societal). FACIT Utilities Utility Assessment “Utilities” can broadly be defined as methods to measure health outcomes using preferences (either an individual’s or societal). In this way researchers can examine not just a quantity of life-years gained from an intervention, but the quality of that time. Utility is the metric used to quality adjust survival, i.e. to obtain the quality adjusted life year (QALY). Thus, c ost utility analysis (CUA) permits the evaluation of health outcomes adjusted by patient preferences. For example, using CUA, researchers may compare the value of extending a life versus the side effects of the intervention. There are different approaches to capturing preferences, including Time-Trade-Off (TTO), Standard-Gamble (SG), and Discrete Choice Experiments (DCE). However, because preferences/utilities are subjective, they can be influenced by many factors, including culture, disease, and change over time. Because cultures differ across countries, country-specific utilities may be required. Given the unique preferences of varying patient populations and country-specific payment systems for healthcare treatment, there are ongoing discussions of the value of disease- and country-specific utility weights and value sets. Recommendations: The FACT-8D , developed by Dr. Madeleine King and her team, has produced the best direct measure. The FACT-8D is based on the FACT-G, one of the most widely-used cancer-specific HRQL measures and included as part of the core of a large suite of FACT measurements. Utilities can be scored from FACT-G data using the FACT-8D scoring algorithm. This can be done prospectively or retrospectively, facilitating the inclusion of FACT-G data in economic evaluation and health technology assessment. Importantly, the FACT-8D captures dimensions reflecting cancer symptoms and impact that are not included in generic instruments, specifically nausea, fatigue, sleep problems and worry about future health. Finally, the utilities provided by the FACT-8D's algorithm have a stronger theoretical base than those derived from mapping algorithms. Select FACT/FACIT Utilities Citations FACT-8D : King et al 2021 VIH FACT-8D Development and Australian Value Set Herdman et al 2020 JPRO Testing the validity and responsiveness of a new cancer-specific health utility measure (FACT-8D) in relapsed/refractory mantle cell lymphoma, and comparison to EQ-5D-5L King et al 2016 VIH FACT 8D and EORTC MAUI.pdf (abstract) King ISOQOL2016_poster_FACT-8D-Aust_FINAL.pdf Other FACT Utility Measures : Pickard et al 2012 VIH Comparison of FACT and EQ-5D utilities Dobrez et al 2007 VIH FACT-G Utilities.pdf Kind et al 2005 Pharmacoeconomics FACT-LUI Mapping algorithms to calculate utilities from FACT-G data : Teckle et al 2013 HQLO Mapping the FACT-G to SF-6D and EQ-5D.pdf Askew et al 2011 VIH FACTM to EQ5D .pdf Cheung et al Mapping Eng & Chi FACT-G to EQ5D 2009.pdf Wu et al 2007 VIH on mapping FACTP to EQ-5D.pdf Hess Comparing FACT Utility Estimates_SMDM poster DRAFT1.pdf FACIT Utility Mapping Slides_2004.ppt

Download scoring documents for this measure. BACK PROMIS SF v1.0-Dyspnea-Functional Limitations Scoring Downloads http://www.healthmeasures.net/score-and-interpret/calculate-scores/scoring-instructions

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PROMIS Pool v1.0 - Dyspnea Activity Requirements Patient Reported Outcomes Measurement Information System Pool - Dyspnea Activity Requirements For patients with dyspnea LICENSE THIS MEASURE Overview Language Availability Licensing Selected References Related Measures Overview Overview Below are the details on the PROMIS Pool v1.0 Dyspnea Activity Requirements MEASURE NAME: PROMIS Pool v1.0 - Dyspnea Activity Requirements VERSION: 1 NUMBER OF ITEMS: 4 PATIENT POPULATION: Dyspnea patients 18 years and older RECALL PERIOD: Past month RESPONSE SCALE: Yes/No DATA COLLECTION: Paper and electronic For permission to implement and administer the measure electronically, please visit: https://www.healthmeasures.net/implement-healthmeasures/administration-platforms ADMINISTRATION: Self-administration and interview when applicable SUBSCALE DOMAINS: Activity Requirements TIME FOR COMPLETION: Less than 5 minutes SCORING: PROMIS Scoring Service: http://www.healthmeasures.net/score-and-interpret/calculate-scores/scoring-instructions RELATED MEASURES: FACIT-Dyspnea , PROMIS Pool v1.0 - Dyspnea Activity Motivation , PROMIS Pool v1.0 - Dyspnea Airborne Exposure DOWNLOAD MEASURE IN ENGLISH DOWNLOAD SCORING DOCUMENT Language Availability Available translations of the PROMIS Pool v1.0 - Dyspnea Activity Requirements can be obtained by registering for permission. Users are not permitted to translate the PROMIS Pool v1.0 - Dyspnea Activity Requirements without permission from FACIT.org. Permission from FACIT.org to translate the PROMIS Pool v1.0 - Dyspnea Activity Requirements may also be contingent upon timeline expectations and availability of FACIT staff. Translations must undergo a rigorous methodology under the guidance of FACIT.org which includes multiple translators, QA steps and cognitive interviews with patients. For commercial use, FACITtrans is the approved translation vendor to translate the FACIT measurement system. Please contact us for more information. VIEW AVAILABLE LANGUAGES Language Availability Licensing Licensing Licensing fees are assessed on a per trial/per measure basis for commercial use. There is no fee for use of the English version, but a license should be obtained. Non-commercial use is assessed on a case-by-case basis. Licensing fees are typically not applied to investigator-initiated research, students, or clinical use. To license an available version of this measure for commercial or non-commercial use, please complete our registration form . All of the information provided in the form will be kept strictly confidential. For questions, please contact us . LICENSE THIS MEASURE Selected References Selected References Choi, S., Victorson, D., Yount, S., Anton, S., & Cella, D. Development of a conceptual framework and calibrated item banks to measure patient reported dyspnea severity and related functional limitations. Value in Health 2011; 14: 291-306. Ruo, B., Choi, S., Baker, D., Grady, K., & Cella,D. Development and validation of a computer adaptive test measuring dyspnea in heart failure. Journal of Cardiac Failure 2010; 16(8): 659-668. doi: 10.1016/j.cardfail.2010.03.002. Victorson, D., Anton, S., Hamilton, A., Yount, S., & Cella, D. A conceptual model of the experience of dyspnea and functional limitations in COPD. Value in Health 2009; 12(6): 1018-1025. Yount, S., Choi, S., Victorson, D., Ruo, B., Ray, D., Cella, D., Anton, S., & Hamilton, A. (2011) Brief, valid measures of dyspnea and related functional limitations in chronic obstructive pulmonary disease (COPD). Value in Health 2011; 14: 307-315. Bonomi, A.E., Cella, D.D., Hahn, E.A., Bjordal, K., Sperner, B., Gangeri, L., Bergman, B., Willems, J., Hanquet, P., & Zittoun, R. Multilingual translation of the Functional Assessment of Cancer Therapy (FACT) quality of life measurement system. Quality of Life Research 1996; 5: 309-320. Eremenco, S., Arnold, B., Cella, D. A comprehensive method for the translation and cross-cultural validation of health status questionnaires. Evaluation & the Health Professions 2005; 28(2): 212-232. Webster K., Cella D., Yost K. The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Properties applications, and interpretation. Health and Quality of Life Outcomes 2003; 1(1): 79-85. Yost K.J., Eton D.T. Combining distribution- and anchor-based approaches to determine minimally important differences: The FACIT experience. Evaluation & the Health Professions 2005; 28(2): 172-191. LICENSE THIS MEASURE Related Measures Related Measures FACIT-Dyspnea Functional Assessment of Chronic Illness Therapy - Dyspnea-10 item LEARN MORE PROMIS Pool v1.0 - Dyspnea Activity Motivation Patient-Reported Outcomes Measurement Information System Pool - Dyspnea Activity Motivation LEARN MORE PROMIS Pool v1.0 - Dyspnea Airborne Exposure Patient-Reported Outcomes Measurement Information System Pool - Dyspnea Airborne Exposure LEARN MORE

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